Friday, September 5, 2014

September 2014 Headache Disorders and Migraine Blog Carnival

September 2014 Headache Disorders and Migraine Blog Carnival

The theme for the September Headache Disorders & Migraine Blog Carnival is to share our thoughts on having invisible illness."Invisible Illness Awareness Week 2014" has suggested we participate by   writing a 30 Things meme or simply sharing our thoughts.  Kerrie Smyres at The Daily Headache will be hosting the carnival this month and it would be great if you would hop over there and check them out.     

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: post-traumatic headache, migraine, Sjogren's Intracranial Hypertension, Raynaud's, hypothyroid, Glaucoma, mixed connective tissue disease/lupus anxiety and depression.
2. I was diagnosed with it in the year: around 1999 and every year after!
3. But I had symptoms since: I think before I fell in 1996, but who can remember? 
4. The biggest adjustment I've had to make is: accepting my life as it is, not what I thought it would be. 
5. Most people assume: because I look "good" I feel good.    
6. The hardest part about mornings are: getting out of bed.
7. My favorite medical TV show is: Mystery Diagnosis.
8. A gadget I couldn't live without is: my kitchen tongs, they help me reach everything from my medications to pitchers on the top shelf in my kitchen cabinets
9. The hardest part about nights are: staying asleep and shutting down my mind.
10. Each day I take 13 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: have tried almost everything but acupuncture.If they work for you great!
12. If I had to choose between an invisible illness or visible I would choose: neither, but if push came to shove, an illness that is visible would be better, I guess.
13. Regarding working and career: not the career I planned on and working is nearly impossible. 14. People would be surprised to know: how much daily pain I live with and have adapted to.
15. The hardest thing to accept about my new reality has been: I can't do everything I want to. 
16. Something I never thought I could do with my illness that I did was: help others.
17. The commercials about my illness: Suck!
18. Something I really miss doing since I was diagnosed is: multitasking.
19. It was really hard to have to give up: caffeine.
20. A new hobby I have taken up since my diagnosis is: I haven't started one. 
21. If I could have one day of feeling normal again I would: for started I would sleep late, drink coffee and go to bed way past my bedtime!!
22. My illness has taught me: a new way to live and to be a bit more patient.
23. Want to know a secret? One thing that gets under my skin is when people say: "oh you have a headache, I had one yesterday too."
24. But I love it when people: take the time to ask how I really feel and mean it.
25. My favorite motto, scripture, quote that gets me through tough times is: "That which does not kill us makes us stronger" Friedrich Nietzsche.

26. When someone is diagnosed I'd like to tell them: hang in there,you'll find lots of support 27. Something that has surprised me about living with an illness is: how many people live with invisible illness too.
28. The nicest thing someone did for me when I wasn't feeling well was: my wonderful children continually help me with everything! 
29. I'm involved with Invisible Illness Week
 because: raising invisible illness awareness

30. The fact that you read this list makes me feel: thankful and honored!!
October's theme for the Headache Disorder & Migraine Blog Carnival is "Share your tips for creating a Migraineur-friendly living environment." If you have questions about the carnival, contact Diana at the Headache Disorders and Migraine Blog Carnival.      

As always thanks for reading,


Tuesday, September 2, 2014

September is Pain Awareness Month 

As a U.S. Pain Foundation Pain Ambassador, I'd like to share with you the U.S. Pain Foundation Pain Awareness Month activities. Some include online challenges while others take place in the "real" world. I hope you'll participate in the ones you can.

You can start off by taking the US Pain Pledge to raise awareness, educate, empower and support those in chronic pain.  The U.S. Pain Foundation's 30 Day Challenge is a fun and easy way to help the cause. For example yesterday's challenge involved changing your social media pages to the U.S. Pain Foundation logo, which you can still do! Today was to wear blue and white to show support for pain awareness. Tomorrow, day 3 is to write about how living pain free would impact your life. To follow and participate in the rest of the challenge, click on the above link.

Being supportive and raising awareness will help more than 100 million (yes that's the number) people who live in chronic pain. How will you help?

As always thanks for reading,

Dealing with migraine setbacks I think anyone with migraine disease or other chronic illness can identify with setbacks. As frustra...